MY BABY BOY,DAVID ! ! !

SO MUCH TO SAY ABOUT HIM,WHEN I GET A CHANCE I WILL EDIT THIS BLINGEE WITH UPDATES.BUT NOW I MUST GET TO SLEEP AT LEAST FOR AN HOUR,SO I CAN RETURN TO HIS BEDSIDE,HE HAS TAKEN A TURN FOR THE WORST!PLEASE PRAY FOR HIM AS MUCH AS POSSIBLE...I LOVE YOU ALL AND MISS YOU MORE,BUT DUTY CALLS... WELL YESTERDAY WAS A BIT BETTER,THEY ARE TREATING HIS BLOOD CLOT BEHIND HIS RIGHT EYE,AND I HAVE BEEN GIVING HIM THERAPY SO HE CAN REGAIN HIS ABILITY TO WALK AGAIN,TODAY WE WILL TRY TO GET HIM TO STAND UP, HIS SEIZURES ARE STRONGER THEN EVER,SO WE ARE UPPING HIS MEDS.HOPING IT WILL HELP KEEP THEM UNDER CONTROL!I PRAY IT WORKS...HIS SHUNT IS A BIT SLOW DRAINING,AND HE IS NOT STABLE ENOUGH TO FIX IT YET DUE TO HIS HIGH BLOOD PRESSURE,AND THE BLOOD CLOT,PLEASE CONTINUE TO PRAY...HE FOUGHT BOTH STROKES,AND WOKE UP FROM HIS SHORT COMA NOT ABLE TO FEEL HIS BODY AT FIRST,BUT MAMA BROUGHT HIE SOME SHIATSU FULL BODY MASSAGE,AND A NECK ONE,AND A HEATING PAD,I WORKED WITH HIM ALL DAY TO STRETCH EVERY PART OF HIS BODY HE STARTED TO MOVE AGAIN,BUT STILL CANNOT USE THE BATHROOM ON HIS OWN SO THEY PLACED A FOLEY TO RELIEVE HIM.HE EVEN OPENED HIS EYE AGAIN EVEN THOUGH HE STILL CANNOT MOVE HIS EYE BALL YET,BUT HE MAKES ALL EFFORTS TOO, I CHOSE SOME OF MY FAV. PICS. OF HIM TO MAKE THIS SO EVERYONE CAN SEE WHO THEY ARE PRAYING FOR,AND THESE PHOTOS HARDLY SHOW HIS DISABILITIES,AND SHOW HIS HAPPINESS,HIS INNER BEING,FROM THESE PICS.YOU CAN PLAINLY SEE HE IS A WINNER!AND THIS IS NOTHING MORE THEN A HURDLE,HE HAS JUMPED SO MANY BEFORE,AND NOT WILLING TO STOP NOW... WELL TODAY THEY STILL DON'T HAVE ANY ANSWERS FOR THE STROKES AND SHORT COMA HE HAS HAD,BUT HIS EYES ARE BOTH OPEN BUT HIS VISION IS NOT THAT WELL YET,HE CAN FINALLY FEEL HIS FACE AGAIN,SO THE BLOOD THINNER IS DE-SOLVING THE BLOOD CLOT BEHIND HIS EYE,NOW THEY ARE TESTING FOR SPINA BIFIDA,HE GOT TO WALK FOR THE FIRST TIME IN OVER A WEEK,STILL A BIT WOBBLY BUT HE CAN WALK!!!AGAIN,YEAH!THANKS FOR ALL THE PRAYERS AND BLINGS DAVID WILL HAVE A LOT OF THANK YOUS TO GIVE BACK WHEN HE COMES HOME...GOT TO REST NOW FOR MORNING...WILL CONTINUE TO UPDATE... WELL TODAY DAVID WALKED DOWN THE HALL,HE CAN SMILE AGAIN,HIS EYES ARE STILL THINKING ON THEIR OWN BUT WE WILL GET THEM STRAIT AGAIN I AM SURE OF IT!IN THE MORNING THEY WILL DO A SPINAL TAP TO CHECK THE CERABLE FLUID PRESSURE,AND HE IS HAPPY TO HAVE THE DREADS AS HE CALLS THEM(THERE REALLY ABOUT 50 WIRES OR SO ALL TWISTED UP AND ATTACHED TO HIS HEAD)THEY STILL CAN'T FIGURE OUT WHAT CAUSED THIS ALL!MAYBE THEY WILL COME UP WITH SOME NEW PROBLEM AND SHALL CALL IT MASON'S SYNDROME,MAKE MEDICAL HISTORY...ALL I KNOW IS I WANT MY BABY BACK!!!TRYING TO KEEP A PIECE OF MIND WEATHER FROM SILLY HUMOR,OR FEAR OF THE UNKNOWN,KNOW MATTER WHAT,I HAVE TO BE STRONG FOR HIM!HE'S JUST AS SCARED AS I,ALL I CAN DO IS WAIT ON HIM HAND AND FOOT,LYE DOWN BESIDE HIM WRAP MY ARMS AROUND HIM AND LET HIM KNOW HOW MUCH I LOVE HIM...AND HE REPLIES EVERYTHING IS GOING TO BE JUST FINE MOM,AND I LOVE YOU...IT HURTS SO BAD!!!TO SEE HIM LIKE THIS,AND COVERED IN BRUISES ON HIS ARMS AND BELLY FROM ALL THE BLOOD THINNER SHOTS,HE MAY NEED TO DO THIS FOR THREE MONTHS HAS A LOT MORE MEDICINE TO TAKE,GOD I NEVER IMAGINED HOW DIFFICULT THIS WOULD BECOME,I AM SO SCARED MY STOMACH IS IN KNOTS!MY HEART IN MY THROAT...I FEEL LIKE I'VE BEEN HIT BY A MAC TRUCK!WELL IT'S 12:00PM AND GOT TO GET A LITTLE SLEEP,BEFORE HEADING BACK DOWN TO THE HOSPITAL THANKS EVERYBODY!FOR ALL YOUR SUPPORT,WILL SEE WHAT HAPPENS TOMORROW,TILL THEN KEEP PRAYING!!! WELL TODAY DAVID WAS TO HAVE A SPINAL TAP BUT DUE TO THE SLIGHT SCOLIOSIS THAY COULD NOT FIND HIS SPINAL SAC,THEY POKED HIM 4 TIMES TRYING TO FIND IT!TODAY WAS MY BROTHER'S B-DAY HE WOULD HAVE BEEN 39...HARD TO BELIEVE HE HAS BEEN GONE FOR THREE YEARS NOW.BUT I ASKED HIM TO BRING HOME MY BABY BOY,AND HE DID!!!DAVID CAME HOME TODAY!!!THEY STILL CAN'T GIVE HIM A DIAGNOSIS...TO MANY THINGS GONE WRONG,SO NOW HE WILL BECOME A MEDICAL QUESTION?MASON'S SYNDROME.HE LOST MORE OF HIS VISION,AND NEEDS LITTLE HELP NAVIGATING,HE HAS TO HAVE 2 NEEDLES IN HIS STOMACH SADLY IT IS BLACK/PURPLE FROM ALL THE BRUISING BLOOD THINNERS 2 TIMES A DAY,HE HAS 5 NEW MEDS.TO TAKE AND HAS TO HAVE THE SPINAL DONE ON TUES. WITH A SPECIAL X-RAY PROCEDURE I AM SCARED!I HAD IT DONE AND HAD A BAD EXPERIENCE,THE WORST REACTIONS,HAD TO GET A BLOOD PATCH DONE AND WAS IN HOSP. FOR A WEEK DUE TO IT,THE MOST AWFUL HEADACHE I EVER EXPERIENCED I WANTED TO ...YOU KNOW!AND I HOPE HE DOES NOT HAVE THAT ON TOP OF ALL ELSE HE HAS FACED!HIS SPIRIT IS AMAZING...I AM TRULY BLESSED TO HAVE HIM FOR A SON,I CAN'T SAY IT ENOUGH,THEY LET HIM COME HOME TO BE WITH HIS FAMILY FOR EASTER,MY DAUGHTER IS DOING ALL THE SHOPPING AND COOKING FOR ME...SO SWEET OF HER, WERE NOT OUT OF THE WOODS YET,BUT I SEE LIGHT THROUGH THE LEAVES...AND HE HOLDS THE STRENGTH OF A NATION!!!I THANK GOD EVERY TIME I SEE HIS SMILE IN THE MORNING AND A I LOVE YOU MOM...AND I LOVE YOU BABY BOY!!!WE MAY NEED TO DO THE SHUNT SURGERY STILL THAT'S WHAT THIS TEST IS FOR,TO SEE HOW MUCH PRESSURE THERE IS,IT IS SAD ALL THESE DIFFERENT PROBLEMS HAPPENED ALL AT ONCE,OVER 30 SPECIALIST GATHERED AROUND AND WERE BOGGLED!NEVER SAW THIS HAPPEN TO ANYONE BEFORE.STILL SEARCHING AROUND FOR ALL THE ANSWERS,KEEP PRAYING IT'S WORKING!!! DAVID'S DIAGNOSIS OVERALL TO DATE: HYDROCEPHALUS(WATER ON BRAIN),CEREBRAL PALSY ON RIGHT SIDE OF BODY,COMPLETE BLINDNESS IN LEFT EYE NOW,VERY LITTLE VISION LEFT IN RIGHT EYE (ADJUSTING TO NEW SIGHT),ARACHNOID CYST ALSO CALLED PORENCEPHALIC CYST ON VISION LOBES,SEIZURE DISORDERS,CAVERNOUS SINUS THROMBOSIS(BLOOD CLOT BEHIND EYE),VENTRICULAR-ATRIAL SHUNT(FROM HIS BRAIN TO HIS HEART),CHRONIC STATIC ENCEPHALOPATHY MANIFESTED AS RIGHT HEMIPLEGIA,TWO MINI STROKES,A SHORT COMA,SLIGHT SCOLIOSIS OF THE SPINE,AND I AM SCARED THERE MAY BE MORE TO COME...BUT HIS STRENGTH IS AMAZING HE IS CATCHING UP IN COLLAGE SO HE CAN WALK WITH HIS CLASS IN SIX WEEKS THE FIRST TO GRADUATE COLLAGE OF ALL MY CHILDREN,I AM SO PROUD OF HIM... FEELS GOOD TO BE HOME,IF ONLY FOR A SHORT WHILE... IN GOD'S HANDS WE PLACE OUR LIVES,AND IT IS HIS WILL TO GUIDE US THROUGH ALL TRIALS WE FACE DAILY,I TRUST IN MY LORD,MY SAVIOR,MY FATHER.HE GAVE ME THIS BEAUTIFUL CHILD,AND I THANK HIM!THE GREATEST GIFT OF ALL...LIFE!THE NEXT BEST THING FRIENDS TO SHARE IT WITH!!!THANKS...I LOVE YOU GUYS!!! WELL 4-15=09 ,TOOK DAVID BACK TO HOSP FOR ANOTHER TRY FOR THE SPINAL TAP,AND THEY TRIED TWICE MORE,BUT UNFORTUNATELY THEY WERE UNSUCCESSFUL IN GETTING ANY FLUID?WHY?I HAVE NO IDEA WE ALL HAVE TO HAVE IT!THE CEREBROSPINAL FLUID PROTECTS OUR SPINE AND NERVES,AS WELL AS OTHER JOBS IT DOES FOR US,BUT THEY CAN'T SEEM TO GET ANY OUT OF HIM THIS WAS THE SIXTH ATTEMPT!NO MORE HE SAY'S! THEY HAD ENOUGH TRY'S HE SAY'S! I CAN'T BLAME HIM IT HURTS,AND HE IS TIRED...HE JUST WANT'S HIS LIFE BACK TO NORMAL AS CAN BE...TODAY WE WILL DISCUSS OTHER OPTIONS WITH HIS NEUROSURGEON... DAVID'S DIAGNOSIS OVERALL TO DATE: HYDROCEPHALUS(WATER ON BRAIN),CEREBRAL PALSY ON RIGHT SIDE OF BODY,COMPLETE BLINDNESS IN LEFT EYE NOW,VERY LITTLE VISION LEFT IN RIGHT EYE (ADJUSTING TO NEW SIGHT),ARACHNOID CYST ALSO CALLED PORENCEPHALIC CYST ON VISION LOBES,SEIZURE DISORDERS,CAVERNOUS SINUS THROMBOSIS(BLOOD CLOT BEHIND EYE),VENTRICULAR-ATRIAL SHUNT(FROM HIS BRAIN TO HIS HEART),CHRONIC STATIC ENCEPHALOPATHY MANIFESTED AS RIGHT HEMIPLEGIA,TWO MINI STROKES,A SHORT COMA,SLIGHT SCOLIOSIS OF THE SPINE,AND I AM SCARED THERE MAY BE MORE TO COME...BUT HIS STRENGTH IS AMAZING, HE WILL ACCOMPLISH ALL HE SETS OUT TO DO... DAVID'S FAVORITE SONGS:http://www.youtube.com/watch?v=9kfi3rN0C50,SKILLET-WHISPERS IN THE DARK http://www.youtube.com/watch?v=jP0Ne9aW7UI,SKILLET-THE LAST NIGHT, WELL THINGS ARE SORTA STRANGE AT THIS TIME FOR HIM,STILL CAN'T FIGURE OUT WHY HE HAS NO SPINAL FLUID!!!MAY NEED A NEW SHUNT???FIND OUT SOON...

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